Every penny we raise goes directly to help children and families affected by Encephalitis

What is Encephalitis?

Encephalitis is inflammation or swelling of the brain

Childhood Encephalitis usually results in an Acquired Brain Injury (ABI) which can cause long term physical and cognitive problems

Affecting over 6,000 people a year in the UK alone

Anyone of any age or any background can get Encephalitis at any time

How we help

Personally support families going through Encephalitis

Raise awareness

Fund research into causes, diagnoses & treatments

Fund training for those involved with the ongoing care and rehabilitation of children with life changing Acquired Brain Injuries

Matty’s story

“Encephalitis is still so unheard of by so many people, yet it is just as life threatening as, if not more than, meningitis… The support from people who have been there is genuinely invaluable. It’s not a faceless charity, you know their knowledge is first-hand, and it means the world to know that there are people there for you.” Matty’s Mum

Our Patrons & Ambassadors

Hover over each image to find out more

When asked if I would consider becoming a patron of their charity, I was honoured, there was no doubt in my mind and of course I said yes…

Louis Tomlinson

I was very honoured to be invited to become a Patron of this wonderful charity . I had no hesitation in accepting. As a father of young children myself, I so much admire…

Paul Dickov

I had never heard of Encephalitis. It is one of those illnesses that hardly anyone knows anything about. I have since come to understand just how vital this charity is, and when they asked…

Andrew ‘Freddy’ Flintoff

It is wonderful to be part of such an incredible charity. Everybody associated with it works tirelessly to raise awareness and as…

Joe Hart

I’m proud to support the terrific work of the Eden Dora Trust – providing invaluable help for children and families…

Emily Maitlis

I was stunned when I was first told and had never heard of the illness. Then I started asking around and found quite a few people …

Paul Wait

I am delighted to be a patron of the Eden Dora Trust and to hopefully be a small part of creating more awareness of…

Damian Williams

LATEST TWEETS

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🧠TOPS-UK supports young people (13–19) with an ABI to manage everyday challenges
Struggling with planning, organisation, or feeling overwhelmed?
💡 Learn strategies
📱Online & accessible (& coach support)
🌐http://tops-uk.org
📧topsuk@exeter.ac.uk

#ABI #Encephalitis

Half term is approaching, with lots of activities planned 🎃 We understand that for some families of children after Encephalitis & with an ABI, school holidays can be a tough time 🫶
We are here to support you via our helpline, email, or our online resources 💙
#ABI #encephalitis

‼️TICKETS SELLING FAST‼️

Our 2025 Summit is set to be an inspiring and informative day, featuring engaging talks, specialist legal presentations, and sessions co-delivered with individuals who have lived experience of acquired brain injury. The event also offers plenty of…

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